5-21-2018
Hello All,
This has been a rough several weeks for us. Brian’s blisters on his leg popped, but the scabs that started forming looked a little infected so we took him to see the family doctor. The doctor put him on an antibiotic and told Steve to use Neosporin. When Steve used it, the blisters started to weep. I am assuming that this is the infection being leached out. Anyway, we have been sort of house bound as Steve does not want to take him out anywhere with it open in case of an infection. He does have stuff to bind it, if necessary but the doctor suggested we keep it open as much as possible. Brian has not been able to do any of his leg therapy or ride his stim bike, which has not made him happy, as well as having more spasms. I had rescheduled his MRI for Thursday but Steve doesn’t want to take him into the hospital and a possible source or MRSA or other germs, and I agreed. I have rescheduled his MRI now for the end of June, after Steve has his surgery.
Our caseworker has been working for two weeks trying to find us someone to come in and help with Brian while Steve is recuperating for the first 2-3 weeks. She has not been able to find someone, so now we are looking into nursing agencies, hoping that we can submit it to the insurance. It has made me very nervous for Brian’s future. Because of the level of care that he needs, agency aides are not able to provide the care with their skill set. The caseworker said Brian would have to go to a nursing facility. I said to her that she needed to look into this for the future because this house was built for Brian and it was not sensible to send him to a nursing facility. I am very worried about all of this and am trying to be proactive. My niece, who works with elderly and disability placements is trying to help me. She was able to find a nurse who can come twice on the day of Steve’s surgery just to help with Brian. Scott is going to stay with him that day to feed him and be here, but Scott can’t do his care. I am very frustrated with the system that would put my vibrant son into a nursing facility because of his needs, which can be handled at home. As usual, it is based on money. Medicaid and Medicare do not pay for the quality of care that people may need. If anyone knows of any solutions to look into, please let me know.
Please pray that we can find the help we need so that Steve can have his surgery and not worry about Brian. Also, please pray that science, medicine, and God can restore Brian’s function enough that he can look after himself in the future. Our policy makers need to explore other options for adults who have special needs so they are not treated like nuisances, put out of sight, out of mind.
Love,
Dawn
1,660 Responses
This site definitely has all the info I needed about this subject and didn’t know who to ask.
This article is wonderful. I gained tons from perusing it. The details is highly educational and structured.
This is great. I gained a lot from going through it. The details is highly educational and arranged.
That is a good tip especially to those new to the blogosphere. Brief but very precise info… Thank you for sharing this one. A must read article.
This is wonderful. I gained plenty from reading it. The information is highly informative and structured.
This article is great. I learned a lot from reading it. The information is very informative and structured.
Genuinely appreciated this entry. It offered a lot of helpful insights. Great work on writing this.
Great article. I’m dealing with many of these issues as well..
Wonderful article. It’s highly well-written and filled with beneficial insight. Many thanks for providing this information.
Almost all of the things you point out happens to be astonishingly legitimate and that makes me ponder the reason why I hadn’t looked at this with this light previously. This particular article really did switch the light on for me personally as far as this particular issue goes. However there is one particular issue I am not really too cozy with and while I attempt to reconcile that with the central theme of your position, allow me observe what the rest of your subscribers have to say.Nicely done.